The Butterfly Child: A Study in Pain and Courage

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Fourteen-year-old Jonathan Pitre is diehard hockey fan who suffers from Epidermolysis Bullosa, one of the most painful conditions known to modern medicine.  They call it the "worst disease you've never heard of."  But his courage and determination to live is unlike anything in sports, or frankly anything you've ever seen.

Jonathan's story is haunting, heart-wrenching, but incredibly inspiring.  He is one of the bravest little boys imaginable and his story must be shared.  

So please do your part.  Watch.  Learn.  Share.  Donate.  And don't forget to thank your lucky stars.  Every day!

To learn more, or to donate to families affected by EB, go to


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